the ENT, my ENG, etc.

On Thursday morning I found out from my ENT that my ENG was normal, which means... I actually don't know what it means. I was too busy weighing out the options of insanity being offered to me instead of asking all the appropriate questions.
Since my balance is getting a little bit better, the tinnitus is gone and my hearing seems to have improved I was hoping I would get some sort of answers regarding what's been keeping me dizzy for the past 4 months. Instead I was told that I was getting a diagnosis of vestibular neuronitis, which the ENT then called a "wastebasket diagnosis," meaning I have something wrong with me that doesn't fit into any other category. Then he offered me a referral for a consult to chemically destroy one side of my vestibular system.

That's right, he suggested destroying half of my vestibular system, with chemicals.

Perhaps the doctor noticed the look of panic on my face which is what led him to suggest his next option, which for some reason seemed perfectly normal to him; he would cut a hole in my ear drum, put a tube and sponge all up in there and then drip steroids right onto the nerve every other week.

That's right, he said he wanted to cut me and put steroids into my head.
I started getting a sneaking suspicion that he was trying to scare the dizzy right out of me.

I finally got my wits back and asked for a referral for some vestibular rehabilitation therapy and another hearing test. These things I can handle. So now I just wait for the okay from my insurance to go into rehab.

I just like saying I have to go to rehab.

happy birthday, Dawn!

I know we haven't talked in ages, but that doesn't mean I don't think about you all the time. I wish we still worked together, because you made it possible for me to do things like this in the office:

happy valentine's day

I'm thinking about you...

FYI

At my last job there was this awesome guy on the facilities staff named Johnny and he loved to chat. He'd chat you up in the courtyard, at your desk or even when you were leaving for the day. Johnny especially loved to chat when Alex would come by to pick me up or have lunch with me. One conversation went a little something like this:

Johnny: In the summer tigers used to walk through my village. So we would kill the tiger and eat it. We would all eat the tiger.
Alex: Really!? What does a tiger taste like?
Johnny: You know. Like tiger.
Alex: Actually, I don't know. What does it taste like?
Johnny: Yeah. Like tiger.
Alex: Yeah, I don't know.
Johnny: You know. Like cat.

But the conversation that I think of most was one that took place when Alex was sitting at my desk waiting for me to finish my day. Johnny walked into the office and stood next to a table which was always a mess with stacks of papers. On one of the stacks was a sticky note that said FYI. Johnny scanned the papers and then pointed to the sticky note and started to chuckle and nod in disbelief.

Johnny: FYI. You know what that stands for?
Alex: ummm... for your information?
Johnny: No, they think we're stupid. You know what FYI means?
Alex: For your information?
Johnny (tearing off the sticky note and furiously stabbing it with his index finger): No, it means Fuck You Idiot!
(maniacal laughter)

I just can't stop writing about my ear!

Last Friday I had an ENG, which is short for electronystagmography, which is a long word for things that make you want to puke. Julianne was nice enough to accompany me on my journey to nausea, which I am most grateful for, because I really didn't want to do it alone.

When my ENT gave his approval for this test a few weeks ago, he said that I would have to go to Stanford to have it done. But it turns out his office in Oakland had just got some brand spankin new equipment for ENGs and I got to be one of the guinea pigs. This was good for me because I didn't have to go somewhere unfamiliar, but bad because the woman being trained and administering the test was one nervous newbie who was easily flustered. Her name was Shirlee, and I'm not sure if that's really how you spell her name, but the permed hair and fan shaped cloisonne earrings lead me to believe I'm right. Shirlee was being trained to use this equipment by a man whose name I don't remember. I do remember that he looked like Tony Robbins though, so that's what I'm going to call him from now on, and he's going to like it.

To take these tests I was suited up with some spectacular goggles. The right eye of the goggles was left open, so I could still see around the room and the left eye was always covered, that was the camera-hog eye, the one on the TV. Of course, the first thing I did once I had the goggles on was look at my eye on the TV monitor, which was pretty kick ass. You haven't really seen your eye until you've seen it six inches tall, looking right back at you. I had to overlook the fact that it made my mascara look totally clumpy. I may be dizzy, but a girl still has to look good.

For the first part of the test I sat in front of a laptop where I watched red and green triangles go back and forth, then watched them jump from left to right. Next came the tongue depressor test. There were no real tongue depressors involved in this, but on the screen hundreds of lines, which looked like tongue depressors, would scroll by vertically and I was asked to count the ones in the center. I felt like I was doing it wrong, but Tony Robbins assured me I was doing a great job. After that I was told to look at a light which was on the top of the computer and turn my head right to left (as if I was saying no) along with the beeps. For some reason this confused me, because I wasn't sure if it was BEEP, right, left or BEEP right, BEEP left. Shirlee asked if I understood and for some reason I said sure, but when the test began I admitted my confusion and was then startled by Tony Robbins, who grabbed my head from behind with both hands and manually made my head turn to the beeps. Uncomfortable, yet hilarious. Once that was done I had the pleasure of doing the same exercise, but nodding as if to say yes. This time I did it all on my own, like a big girl, but I couldn't keep up with the beeps, which got faster and faster as time passed. There were a few things holding me back from the fastest nod possible; I thought the goggles were going to fling off my head and I felt uncontrollable laughter coming on. The last test in this section was the most fun, I got to spin from side to side while sitting and looking at the light. Wheeeeee. Through all of these tests Shirlee never really got the hang of when she was supposed to click on pause or next to record my eye movements. I don't think she was supposed to click either one of those. It was an uphill battle for Tony Robbins.

After the first round of tests was complete I was moved to a chair much like one for a patient at the dentist's office. For the remainder of the tests my right eye was also covered. Total darkness + listening to Shirlee ask the same questions over and over + knowing Julianne was thinking the same thing I was and looking at me and my ridiculous goggles = hard to not laugh out loud. I can't say I remember all the tests in the second round because they all seemed the same, I was supposed to look straight ahead while I was being tipped backwards, twisted to the side, sat back up, etc... it's all a blur.

Then came the caloric test. This was the one I feared. This test involves filling the ear canal with cold air and then warm air to track nystagmus, and amazingly enough the eye movement can tell if there is nerve or brain damage. I was reclined back and Shirlee put a tube in my right ear for about a minute, filling it with the cold air. I started thinking "hey this isn't so bad after all, I'm just a little more dizzy than before" but then 20 seconds passed after the tube was removed and I was in vertigo agony. I felt like I drank everything behind the bar at a Knights of Columbus meeting. This would be the time when Tony Robbins asked me if I wanted a bucket, to which I replied "not yet." Julianne told me her shoes were vinyl, so it would be okay if hurled. And then, for some reason, Shirlee stopped recording my eye movement, and when Tony Robbins asked her what she was doing I could sense the frustration in his tone. Being so dizzy and in the dark I wasn't able to voice my concern about the accuracy of the test now that Shirlee had clicked incorrectly. But luckily there was Julianne, the master of tactfulness, who was able to ask the question that was on my mind. And not only was she direct about it, but she asked the qustion in the most polite format I've ever heard. I'm not sure if Tony Robbins was throwing us a bone or not, but he told Julianne that everything should be fine. At this point I was still reeling and I just wanted out, but I figured if I hadn't puked yet I was good to go for the rest of the test. Cold air in the left ear was next, and I don't know if the air never got down there or if I have such severe nerve damage that I didn't react at all, but I felt nothing and was pretty thrilled to leave the land of vertigo... until Tony Robbins put the warm air in each ear. damn. It's amazing how air in the ear can really fuck you up. I feel like I should open up some sort of air bar and tell everyone to skip the middle man and get all crunk with air. Go from sober to sick in 80 seconds. I think I'm on to something.

Now I wait for two weeks to find out what the tests reveal. Until then I've decided to give up on finding a way to cure my vertigo, but instead I'm looking for a way to inflict it on others... if they're willing, of course.

insightful SPAM

Today I got some SPAM from Christian Mortgage people and the Christian Debt Helpers informing me I could eliminate my debt the Christian way. They quote Matthew 6:12, Forgive Us of Our Debts. delete, delete.

But then I saw a nice one from order_followup@americangirl.com. The title was denied! Of course I didn't open the zip file, provocatively named my date, but right before the attachment it says

you are a bad writer

Who are these American Girls? and when did they meet my 7th grade English teacher?

my immune system, the ignorant over-achiever

Once upon a time I graduated from my MFA program, had my mom staying in my apartment, had a wedding dress made, drove to Las Vegas with Alex (and my mom), got married, drove back from Las Vegas with Alex (and my mom), went on a honeymoon (without my mom) and got the job offer of my dreams all within a three week span. As you can imagine, all of this was quite stressful, so in return for this generous helping of stress my body gave me the gift of hives. Chronic hives. 8 straight weeks of hives. My immune system was attacking an imaginary virus, which it apparently thought was all over my entire body. For two months I lived in itchy misery, sometimes my eyelids would swell up so much that I couldn't see. Other days I couldn't tie my shoes because my feet were abnormally large with hives. Eventually this came to an end, with the help of time and a little acupuncture. But my immune system warned me then, it would do anything for me, even if it meant it had to hurt me in the process of trying to protect me.

It seems, after consulting with my ENT for the third time, that almost 4 months ago my immune system took an offer it couldn't refuse. It took a hit out on virus in my right ear. Not only did my over enthusiastic antibodies kill the virus, they destroyed some nerves in my ear as well. Nerves which are irreplaceable and I was quite fond of; the ones for balancing and hearing. Most likely my body will compensate for the loss over time. How much time is the big question.

I think that today might be an appropriate time to have a little chat with my immune system and outline what kind of destruction is appropriate. I'll probably open with "Let's work smarter, not harder."

right said, fred

Over the past few days these very excellent exchanges took place:

while working at the Iron Puzzler at Endgame -
me: Greg, your pants are too big
Greg: I know.
dude(to Greg): Excuse me, where's the restroom?
Greg: Straight down these pants. STAIRS, stairs.

while in a basic stringing class at Baubles and Beads -
me: Why can't I get this thing over my needle? I think my fingers are slippery.
Julianne: I told you to stop eating so much bacon.

while watching Alex take an allergy pill -
me: Dude, you're addicted.
Alex: You're a dick head!

temazepam induced memories

Trying to remember a time when I wasn't dizzy has become my favorite hobby. It's probably not healthy, but it's what I do. I came up with these two precious childhood moments last night.

When I was about 7 years old, my dad came in from work with a new phone for the apartment. I always thought this phone came from his place of employment, but chances are it was someone's old phone, someone who realized the joy of touch tone phoning 10 years before my parents. It was a kick-ass black rotary phone with a clear plastic dial. This was a big improvement over the other black rotary phone we had, because the dial on that one was metal, and when I would play with the phone (or on the 4 occasions I actually had to dial a number) I remember the weight and sharpness of it digging into my frail fingers, any number with a 9 or a 0 was out of the question. Before my dad set up the new phone in the hallway, my sister and I had a swell time using it like a toy; living the exciting life of a secretary, the hectic day of an operator, and ultimate dream ... taking personal calls. At one point I decided I would do an impression and picked up the phone pretending to be my dad. I think my dad worked for the government at the time, and when he answered the phone there he would say his name, followed by the name of the department he worked for. I recall him saying "interstate". Now that I think of it, he most likely did not work in the middle of a giant highway, but it sounded like interstate to me. With both my parents proudly watching, I picked up the receiver with great enthusiasm and in my best man voice I said my dad's name followed by the word "intercourse." Awkward silence was followed by my mom asking "You do know what intercourse is, right?" And even though I wasn't completely sure, I was positive it was not a phone appropriate word. I looked my mom square in the eyes and blurted out "YES!" I then swiftly escaped to my bedroom, opened a Richard Scary book to the middle as if I had been reading it for hours, and tried pretend the whole thing never happened.


One weekday afternoon (after we had the new phone) my sister and I were doing homework, or rather, my sister was doing homework, and I was taunting her. Although there would be the occasional brawl following the taunting, afternoons like this were usually very quiet, because my mother worked from 11 p.m. - 7 a.m. and slept in the afternoon. On this particular afternoon there was a knock on the door. This was odd for a few reasons, the main reason was that we lived in a three story apartment building and you couldn't get to our apartment on the second floor without having been let in through the main door on the first floor. The other reason was that we had no guests in the afternoon, or any other time. This knock perplexed and intrigued me, so I stopped my taunting and went to the door. Although I had been told to never open the door for a stranger I deduced that no stranger could get to the second floor, clearly this had to be a neighbor, and neighbors aren't strangers! Through the glass and lacy curtain I saw a silhouette which looked very harmless, so I unlocked the deadbolt and turned the knob. An old man towered over me, I noticed that his coat was dirty and his hat was plaid. "I'm your grandfather!" he slurred as he stumbled over the threshold. This man was not my grandfather, or a neighbor. At this point my sister was at the door with me and we looked at each other with fear and sadness. What had I done? There we were, two small girls in awe of a tall, drunk imposter. My sister tried with all her might to push the man back out into the hallway as he continued to assure her that he was our grandfather, she was actually just holding him up. I, on the other hand, walked into my parent's room where I calmly sat beside my mother, shook her awake and let her know a guest had arrived for her. Then I went into my room, opened an Encylopedia Brown book to the middle as if I had been reading it for hours and tried to pretend the whole thing never happened. It turned out the old man was the grandfather of the people upstairs, I was in a lot of trouble and I still can't believe I deserted my sister.

a shower by candlelight

sounds relaxing and perhaps enjoyable. But it actually sucks when your power goes out at 7:00am and all you can find are 3 tea lights and a candle that smells like a giant tomato. Even all together this sad votive grouping could not illuminate my cavernous, windowless bathroom.

favorite lyrics of the day (vol. 4)

from That's What I Love About Sunday, Craig Morgan

I stroll to the end of the drive,
Pick up the Sunday Times, grab my coffee cup.
It looks like Sally an' Ron, finally tied the knot,
Well, it's about time.
It's 35 cents off a ground round,
Baby. cut that coupon out!

Let it be known that the CD player in my car is broken and I was forced to listen to the radio. In my pursuit of a tune to rock out to I came upon this gem.

it's not a tumor*

But I am now the owner of some pretty sweet pictures of my brain.

Here's the rundown of what's been going on with my ailing ear:

Before Thanksgiving I saw my ENT twice. I thought he was cool the first time I met him, but after our second meeting I came to the conclusion that he's kind of a meanie and doesn't seem to like to deal with the mysterious. He was very impatient while I was trying to describe what kind of dizziness I was experiencing and told me that he didn't understand what I was talking about. At the end of our allotted 10 minutes together he was quick to give me all sorts of medications, tell me "it will go away soon" and send me on my way. Since then I've called his assistant 9 times to only have received one return call, in which she told me to come in the next day. When I arrived on that next day, both the assistant and the doctor were in surgery, unable to see me. I had an auditory brainstem response test on December 15, and I'm still waiting to hear or see the results. I called his assistant twice regarding the outcome of the test, so I could find out if any of my nerves are damaged, but apparently she must keep deleting me off her to do list. The soonest appointment I could get with the ENT is on January 25. ahhh, health care.

In the mean time, I switched my primary care physician and have seen a nurse practitioner at the new practice who I really like. She not only dried tears from my soggy eyes, but also referred me to a neurologist, who I saw last week.

I really dig this neurologist. After introducing me to his 2 pound dog, which was in his office, he assured me that we would figure out what is wrong with me. He spent 30 minutes listening to my history and symptoms. He was shocked to hear that I hadn't been sent in for an MRI yet, and said he wasn't sure what was causing the dizziness, hearing loss or tinnitus, but those things are all signs of an acoustic neuroma, and wanted to rule that possibility out as soon as possible with an MRI. Then he took me into another room where he did a series of tests for balance and hearing. At the end of all this he told me that he noticed I was breathing funny, lots of deep breaths and sighs. He told me I was overbreathing, which is a sign of anxiety. At this point I was thinking "yeah, because I'm in a neurologist's office and you just told me I might have a tumor." He then demonstrated how to hyperventilate and asked me to do it. While taking in way too much air for 30 seconds he asked me to take note of how my dizziness felt before, during and after. I thought nothing could feel more humiliating than a command performance of hyperventilating and feeling like I was going to pass out in front of a stranger (even though he was a doctor), but then he gave me my prescription. Written on a piece of paper were these three things: more aerobic exercise, discontinue overbreathing, try my paper bag theory. Then he gave me a paper bag to breathe into. He instructed me to keep it on hand and breathe into it when necessary, even though it seemed so cliche. He noted that the bag won't help with the hearing loss or the tinnitus, but it would probably help a lot with the dizziness. So off I went to schedule my MRI and breathe into my bag. (I have to admit, I've tried the paper bag a few times, it hasn't done a thing for me.)

I had my MRI this past Sunday and I decided to take an anti-vertigo drug before I went in. Not because I had vertigo, but I was counting on it to calm me down, or knock me out, either one was fine. I figured 25 minutes in an extremely loud and tiny tube which would reveal if I had a tumor might make me a little antsy, or I could overbreathe, and I was pretty sure they wouldn't let me paper bag it in there. It actually wasn't so bad, I didn't freak out when the buzzing and clicking was going on, but the silence was what got my imagination going. I pictured earthquakes, power outages or technicians going out for a smoke and me stuck in a tube there was no way of getting out of. I think the key was to realize how ridiculous these imaginary events were as well as never opening my eyes to see how cramped I really was in that tube. Once I was done I waited with Alex in the lobby for 5 minutes and then some dude handed me a bunch of pictures of my brain. We then promptly drove to Max and Julianne's for coffee, panettone and a viewing of my brain photos. After that we went home and I slept for the rest of the day, while visions of tumors danced in my head.

I found out today that the results of the MRI are normal. I'm glad I don't have a tumor, but part of me was hoping that this would have been the end of ear mystery and I would have some answers. So now I wait for January 25 and another meeting with Dr. Li to try to figure this whole thing out. Until then I'll just keep doing my aerobic exercise with my paper bag handy...


*for this title to have it's full effect, think back to a time before Schwartzenneger presented awesome budgets to all the girlie men of California, but was just a mere Kindergarten Cop

out of commission

My inner ear (or something in my head) is still broken and making everything I try to do all sorts of difficult. So instead of writing about how frustrating everything is, I will lamely put links to some of my favorite old entries... enjoy, won't you?

I tried to buy pants

then I tried to buy a bathing suit

top 40 music makes me feel uncool

I was never meant to be a bridesmaid

why I quit my last job

toys I'll never buy (but my mother will)

is there a doctor in the house?

Alex and I are about to leave for our Christmas trip back to Boston. While packing I couldn't believe I had to dedicate an entire bag to this


Sadly, none of that stuff is helping the dizziness. However, I will be attending my company's holiday party tonight anyways. I figure what the hell, I'll just blend in with any drunks.

allow me to apologize

to the 4 people who read this blog, but I just don't have anything to write about. I've been laid up in the land of the undiagnosed vertigo and nausea all week, feeling extremely sorry for myself.

Let it be known that I am getting up off my ass today and attempting to have a "normal" day. Maybe something funny will happen, like everyone at work will think that I'm a drunk because I can't walk a straight line and I'll miraculously get fired.

for lack of something better to post

My inner ear is officially making my life miserable. But I can always count on Alex to attempt to cheer me up with plenty of delicious dinners.
I wasn't able to enjoy this last night, so instead I will share it with everyone.

Behold, the magic of meat.

reality check

Does Jeff Probst feel like as big of a jerk as he looks like when they film those crappy little segments of him getting the jury votes from a remote island to New York or Los Angeles?

Last night they had Jeff leave the tribal council area with the tub of votes and a machete, where he then proceeded to travel all night throughout the jungle, cutting any vines blocking his way to freedom. As it turned to daylight, he came to a clearing with a helicopter, which then took him to an airplane. Once on said airplane, he turned to the pilot and announced "here's where I get off," and magically suited up and jumped from the plane. He then parachuted safely to the middle of nowhere, where a kick ass motorcycle waited for him. This motorcycle even had a nifty locking rack system on the back for the all important tribal council votes. There was a close up of Jeff putting the votes safely onto the motorcycle, mmmm.... riveting television. Manly Jeff then drove the motorcycle through the mean streets of LA where he proceeded to enter the studio with his tub o' votes to let us all know who would win a million dollars.

It was just so lame.

happy birthday, Ella!

I haven't met you yet, but I already know I love all 7 lbs. and 7oz. of you.

favorite lyrics of the day (vol. 3)

From Christmas in San Francisco, performed by Vic Damone

Christmas in San Francisco
Looking like some fairy land
People with gifts in the crispy air
Giving old Saint Nick a hand

Let's take a peek in Chinatown
Eating lychee nuts and barbecued boar
What can you say about the Golden Gate
That hasn't been said before

minimal decorations = maximum creepy

Last night while Alex diligently studied for the National Board Exams in Optometry, I put 5 Christmas decorations out. My sister gave me some elves a few years ago, ones that looked just like the kind we had when we were growing up. Instead of hanging them on the tree, my Mom would always hang them from the lamps in the living room. It never seemed out of place to me... until I did it in my own home. Now I realize that it's kind of weird to have some little Snap, Crackle or Pop guy all up in your grill while you're trying to unwind on the couch.